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Rituximab Options
Carole-B
#1 Posted : Tuesday, April 08, 2014 5:57:43 PM Quote
Rank: Newbie

Groups: Registered

Joined: 4/8/2014
Posts: 2
Hi everyone

I am a new member and wondered if anyone has tried the drug Rituximab yet? I am thinking of trying it but am not sure.
Help needed please
LouiseMc
#2 Posted : Tuesday, April 08, 2014 6:12:04 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 4/20/2010
Posts: 153
Location: Kent
Hi Carole,

Welcome to the site Smile

I've had Rituximab infusions, I had it last year & the year before, I've had really good results from this. At my last appointment I was told my RA is now in remission, I still take methotrexate for the time being but this will be reviewed in the summer.

I didn't have any nasty side effects, I felt really tired & drained for a couple of days after the infusion but luckily that was all.

Best wishes with your treatment, really hope things improve. Please feel free to ask me anything about it

Take care
Lou x



I love people who can make you smile even when you do not feel like smiling. x
Carole-B
#3 Posted : Tuesday, April 08, 2014 6:21:40 PM Quote
Rank: Newbie

Groups: Registered

Joined: 4/8/2014
Posts: 2
Hi Lou
Thank you for the quick reply. That sounds good. The only reason I worry is because I seem to have a different reaction to drugs to anyone else. S you can understand my worry. Also a lot of he newest drugs can't be taken if you have a history of cancer and I have. So that puts most treatment out of reach. I've tried the oldest ones too like methotrexate and sulphasalazine etc nd whilst they worked really well, all I know is that they messed my blood results up. At the moment I'm struggling to get an appointment with consultant, so maybe I'll suggest Rituximab as I've been told that it's different to the other biologics or anti tnfs or whatever they're called. So thank you
ValerieP
#4 Posted : Friday, April 11, 2014 3:20:54 AM Quote
Rank: Member

Groups: Registered

Joined: 4/11/2014
Posts: 10
Hi Carole,

I am a newby to the site but had my second infusion of Ritiximub last Tuesday so hope I can be of some help. Over the past three years I tried the various tablets and injections. The first session was quite daunting as I didn't know what to expect and the second was easier. I was told not to drive after the infusion and must say I felt quite 'wobbly' but nothing untoward. After each session I felt very tired and although I took a day off work after the first dose, I took 2 off after the second. My downfall. like many, is not taking it easy, I have too much to do. A week after I feel fine, just a few niggly pains in toes and feet but not for prolonged periods and at a level I can easily cope with.
For me it has been a positive experience and the nursing staff were great, I couldn't fault them. The info I received from my rheumy nurse was lacking a bit as I didn't know it took 6 - 7 hours for each infusion but it was great being able to read for so long and then play games on my Kindle. A whole day when when I couldn't do anything else. So far it seems to be working for me and I am one who will try anything that is offered, even though some people are against the bio medicines, to reduce a flare up.
So from me it's a ThumpUp for now. Just hope it continues. Good luck with whatever you decide.

Val
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